Four-year-old Eliza O’Neill has something you’ve probably never heard of. It’s called Sanflippo syndrome and it causes severe neurological symptoms as it progresses.
If left untreated, the disease will likely take her ability to talk and walk, cause painful seizures and blindness before eventually killing her. There is no widely-established treatment.
There is a cure through a gene therapy trial. But for this therapy to save Eliza from permanent neurological damage, the family needs $2.5 million to cover its mind-boggling cost. The O’Neills need at least a million of the total price before the end of June.
Nationwide Children’s Hospital in Columbus, Ohio, plans to test the cure by producing an ongoing treatment during the trial.
Raising at least $1 million in such a short period time may sound like a pipe dream, but don’t underestimate this little girl, her persistent parents and the amazing power of a dedicated community behind her.
Thanks to the video, the O’Neill’s have raised nearly $190,000 on GoFundMe, but they are well off their initial target of $1 million.
The O’Neills’ GoFundMe is now on the front page of the website (and below) and more donations come in minute by minute. Please give. Every little bit helps.
To help fund a cure for Sanfilippo Sydrome, visit GoFundMe – Eliza O’Neill or Facebook – Eliza’s Story.
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